Sjögren´s Syndrome Research Registry

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Tuesday, 22 March 2011

Sjogren's Syndrome Health Explorer

Another useful link to the NHS Sjogren's Syndrome Health Explorer with lots more information.
Posted by Sjogren's Registry at 08:27
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Wednesday, 16 March 2011

Sjogren's Syndrome Patient Information Link


Another useful link http://www.patient.co.uk/health/Sjogren's-Syndrome.htm.
Posted by Sjogren's Registry at 14:52
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Monday, 7 March 2011

More Sjogrens Syndrome Research Registry Sites

This month sees the start up of the Harrogate centre with Dudley and Sheffield expected to follow soon!
Posted by Sjogren's Registry at 11:48
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  • ISSS Abstract: Whole blood micro RNA signature for primary Sjögren’s syndrome-related lymphoma
    Tarn JR, Cockell S, Gillespie C, Al-Ali S, James K, the UK primary Sjögren's syndrome registry, Griffiths B, Bowman S, Young DA, Ng ...
  • Rheumatology Research Fatigue in Sjogrens Syndrome
    Another useful link to the Too Dry, Too Tired  paper on Primary Sjogrens Syndrome. Chronic fatigue is one of the most prevalent and debili...
  • McPhail and Venus hope to increase Sjögren's awareness
      In a video interview with Sky Sports, Stephen McPhail has spoken further of his battle with Sjögren's Syndrome and of his relati...
  • ISSS Abstract: Effects of globin mRNA on whole blood gene expression signature in primary Sjögren’s syndrome
    Al-Ali S, Cockell S, Tarn JR, James K, Young DA, the UKPSSR study group, Griffiths B, Bowman S, Ng WF Objectives : Gene expressio...
  • More Sjogren's Syndrome Research at EULAR, London, 2011.
    This year we have another three papers for EULAR ( European League Against Rheumatism) coming out of the UKPSSR.  The EULAR annual meeting ...
  • International Sjogren's Research Symposium, Athens, Sep 28-Oct 1, 2011
    The scientific research programme  for the meeting in Athens, Greece is available for viewing! Here are just some of the workshops and top...
  • Stephen McPhail talks about his battle with Sjogren’s
    In an ITV article, Cardiff City midfielder Stephen McPhail has given insight into how he came to terms with Sjogren’s Syndrome. Th...
  • 500th Patient - Sjogren's Syndrome Research Registry
    The 500th patient has now been recruited to the Primary Sjogren's Syndrome Registry. A big thank you to everyone involved! Meanwhile...
  • ISSS Abstract: Application of probabilistic functional integrated network analysis to the study of autoimmunity and primary Sjögren's Syndrome
      Katherine James, Jennifer Hallinan, Anil Wipat, Wan-Fai Ng   Objectives: The majority of experimental datasets can be represented...
  • Sjogrens Syndrome Fatigue Research Study
    The latest paper to emerge from the UKPSSR Research Studies is on preliminary data on "Potentially Treatable Symptoms in Primary Sjogr...

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