Wednesday 28 September 2011

Thursday 15 September 2011

Venus Williams Explains Impact Of Sjogren's Syndrome

As you know Venus Williams has been diagnosed with Sjogren's Syndrome.  Venus gives a very watchable explanation of her condition on Youtube.

Venus Williams' Sjogren's Syndrome Diagnosis

No doubt, many have you have heard that Venus Williams was forced to withdraw from the US Open Tennis championship.   Here are some useful links on her diagnosis and its impact upon her from Time Magazine and The Guardian.

Thursday 23 June 2011

Sjogren's Syndrome Research 2011 The Last Six Months

  • Check this link out to get the latest research into Primary Sjogren's Syndrome on PubMed.  
  • The new Limits option allows you to restrict searches to the last month, three months, six months etc.  
  • And you can save your search and request monthly updates by registering with the NCBI.

Friday 17 June 2011

Follow News on the Primary Sjogren's Syndrome Registry

Would you prefer to follow the latest developments by email subscription?  Go to Follow by email, enter your email address and Submit.

Friday 27 May 2011

Sjögren's Syndrome 2011 Medical Meeting BSSA

Following the huge success of the 2010 meeting, What You Want To Know About Sjögren's Syndrome, the next meeting Sjögren's Today is being held in Birmingham, England on 5th November 2011. Tickets are not yet available but members will be contacted as soon as they are available please remember that last year the meeting sold out.  This year priority will go to BSSA members. There will also be a social evening on Friday 4th November, more information check out the BSSA website.

Wednesday 25 May 2011

International Sjogren's Research Symposium, Athens, Sep 28-Oct 1, 2011

The scientific research programme for the meeting in Athens, Greece is available for viewing!

Here are just some of the workshops and topics:

Workshop 1: Diagnostic Criteria of Sjögren's Syndrome
Workshop 2: Evaluation of Salivary Glands in Sjögren's Syndrome
Session: Basic Aspects of Immunopathology of Sjögren's Syndrome
Session: The Role of Sex Hormones in Sjögren's Syndrome
Session: Immunopathology
Session: The Role of B-Cells in Sjögren's Syndrome
Session: Basic and Clinical Aspects of Lymphoma Development in Sjögren's Syndrome
Session: Autoantibodies
Session: Sicca Manifestations in Other Autoimmune Rheumatic Diseases
Session: Animal Models in Sjögren's Syndrome
Session: Update on Genetic Analyses in Sjögren’s Syndrome
Session: Basic and Physiologic Aspects of Salivary Glands Function
Session: Treatment of Sicca Manifestations
Session: Conventional and New Treatment for Systemic Disease

Thursday 28 April 2011

More Sjogren's Syndrome Research at EULAR, London, 2011.

This year we have another three papers for EULAR (European League Against Rheumatism) coming out of the UKPSSR.  The EULAR annual meeting is now the largest international congress in rheumatology attracting around 18,000 delegates (both basic scientists and rheumatology specialists and allied health professionals) from all over the world. 
  1. INCREASED HYPERTENSION RISK in Patients with Primary Sjogren's Syndrome: Results from the UKPSS REGISTRY
  2. AUTONOMIC DYSFUNCTION and SLEEP Disturbance Correlate with Symptoms of FATIGUE in Patients with Primary Sjogren's Syndrome
  3. Relationship between Disease Activity of Primary Sjogren's Syndrome and Patient Reported Outcome - Data from an Interim Analysis of the UK PRIMARY SJÖGREN'S SYNDROME REGISTRY.

Wednesday 20 April 2011

EULAR Award for Cardiovascular Risk Research in Sjogrens Syndrome

Dr. Maria Juarez, a rheumatology specialist trainee in Birmingham, has been awarded a prestigious European League Against Rheumatism (EULAR) bursary for her work on the study of the prevalence of traditional cardiovascular risk in patients with primary Sjogren's syndrome, a sub-study of the UKPSSR. She will be presenting her work on behalf of the UKPSSR on 27 May, 2011 at the EULAR annual conference in  London

This year three studies from the UKPSSR cohort will be presented. The EULAR annual congress is now the largest international congress in rheumatology expecting to attract 18,000 delegates (both basic scientists and rheumatology specialists and allied health professionals) from all over the world.

Thursday 14 April 2011

Clinical Trials and Sjogren's Syndrome

One of the primary objectives of the Sjogren's Syndrome Registry is to promote further research and clinical trials.  We noticed that not all of the UKPSSR trials appear on the current list but the NHS Choices site has a somewhat incomplete list of current trials worldwide.  Check out their Sjogren's Syndrome Clinical Trials page.

Wednesday 6 April 2011

500th Patient - Sjogren's Syndrome Research Registry

The 500th patient has now been recruited to the Primary Sjogren's Syndrome Registry.

A big thank you to everyone involved!

Meanwhile the project has been extended to a revised target of 650 patients and the recruitment of healthy controls continues.

Monday 7 March 2011

More Sjogrens Syndrome Research Registry Sites

This month sees the start up of the Harrogate centre with Dudley and Sheffield expected to follow soon!

Monday 28 February 2011

Sjogrens Syndrome Latest Research on PubMed

Click PubMed Sjogrens Syndrome Search for the latest latest medical research papers on Sjogrens Syndrome.  You can then set up an RSS link so that you are kept abreast of new papers as they are added to the National Institutes of Health PubMed database.

Wednesday 16 February 2011

British Sjogren's Syndrome Association Medical Meeting

Heads up everyone.  The next Medical Meeting of the British Sjogren's Syndrome Association will be held in Birmingham on November 5th 2011.  Click here for more details.

Monday 14 February 2011

Rheumatology Research Fatigue in Sjogrens Syndrome

Another useful link to the Too Dry, Too Tired paper on Primary Sjogrens Syndrome.

Chronic fatigue is one of the most prevalent and debilitating symptoms in primary SS (pSS). Approximately 70% of pSS patients suffer from disabling fatigue, which is associated with reduced health-related quality of life. In this article, we review the instruments used for evaluating pSS-related fatigue, our current understanding of the underlying psychosocial and physiological mechanisms of fatigue in pSS and the therapeutic strategies that have been studied in the management of fatigue in pSS.

Friday 11 February 2011

Sjogrens Syndrome Research Registry - Three New Centres

We can welcome three new centres to the Sjogrens Syndrome Research Registry - Bath, Ipswich and Liverpool - began recruiting this month!

Tuesday 1 February 2011

Sjogrens Syndrome Fatigue Research Study

The latest paper to emerge from the UKPSSR Research Studies is on preliminary data on "Potentially Treatable Symptoms in Primary Sjogren's Syndrome-Associated Fatigue."  The finding will be presented as a poster on 13 April 2011 at this year's British Society for Rheumatology Annual Meeting in Brighton.  Watch this space!

Wednesday 26 January 2011

International Collaborative Sjogrens Syndrome Research Study

UKPSSR contributed our samples to Dr. Kathy Moser at the Oklahoma Medical Research Foundation.  Preliminary research data "A High-Density Genome-Wide Association Study by the Sjögren's Genetics Network (SGENE) Identifies Both Novel Susceptibility Loci for Primary Sjogren's Syndrome and Overlapping Effects with other Autoimmune Disorders" were presented at the American College of Rheumatology Annual Conference in Atlanta, USA.

Wednesday 19 January 2011

Research into Cardiovascular Risk in Sjogrens Syndrome Patients.

Dr. Maria Juarez, will be making an oral presentation on research into 'Prevalence of Traditional Cardiovascular Risk Factors in Females with Primary Sjogrens Syndrome' on behalf of the UKPSSR at the British Society for Rheumatology Annual Meeting in Brighton, UK on 13 April, 2011.

Thursday 13 January 2011