Thursday 28 April 2011

More Sjogren's Syndrome Research at EULAR, London, 2011.

This year we have another three papers for EULAR (European League Against Rheumatism) coming out of the UKPSSR.  The EULAR annual meeting is now the largest international congress in rheumatology attracting around 18,000 delegates (both basic scientists and rheumatology specialists and allied health professionals) from all over the world. 
  1. INCREASED HYPERTENSION RISK in Patients with Primary Sjogren's Syndrome: Results from the UKPSS REGISTRY
  2. AUTONOMIC DYSFUNCTION and SLEEP Disturbance Correlate with Symptoms of FATIGUE in Patients with Primary Sjogren's Syndrome
  3. Relationship between Disease Activity of Primary Sjogren's Syndrome and Patient Reported Outcome - Data from an Interim Analysis of the UK PRIMARY SJÖGREN'S SYNDROME REGISTRY.

Wednesday 20 April 2011

EULAR Award for Cardiovascular Risk Research in Sjogrens Syndrome

Dr. Maria Juarez, a rheumatology specialist trainee in Birmingham, has been awarded a prestigious European League Against Rheumatism (EULAR) bursary for her work on the study of the prevalence of traditional cardiovascular risk in patients with primary Sjogren's syndrome, a sub-study of the UKPSSR. She will be presenting her work on behalf of the UKPSSR on 27 May, 2011 at the EULAR annual conference in  London

This year three studies from the UKPSSR cohort will be presented. The EULAR annual congress is now the largest international congress in rheumatology expecting to attract 18,000 delegates (both basic scientists and rheumatology specialists and allied health professionals) from all over the world.

Thursday 14 April 2011

Clinical Trials and Sjogren's Syndrome

One of the primary objectives of the Sjogren's Syndrome Registry is to promote further research and clinical trials.  We noticed that not all of the UKPSSR trials appear on the current list but the NHS Choices site has a somewhat incomplete list of current trials worldwide.  Check out their Sjogren's Syndrome Clinical Trials page.

Wednesday 6 April 2011

500th Patient - Sjogren's Syndrome Research Registry

The 500th patient has now been recruited to the Primary Sjogren's Syndrome Registry.

A big thank you to everyone involved!

Meanwhile the project has been extended to a revised target of 650 patients and the recruitment of healthy controls continues.